Our daughter’s medical puzzle maybe figured out?

                                    February 7,2020 Chloe saw a new dentist  that identified an issue we were trying to find answers to for years from her doctors and dentists she had since birth New dentist said it was unacceptable that she could not open her mouth. He called it Temporo Mandibular joint dysfunction.

This is the Mayo Clinic description of this problem;

Overview

The temporomandibular (tem-puh-roe-man-DIB-u-lur) joint (TMJ) acts like a sliding hinge, connecting your jawbone to your skull. You have one joint on each side of your jaw. TMJ disorders — a type of temporomandibular disorder or TMD — can cause pain in your jaw joint and in the muscles that control jaw movement.

The exact cause of a person's TMJ disorder is often difficult to determine. Your pain may be due to a combination of factors, such as genetics, arthritis or jaw injury. Some people who have jaw pain also tend to clench or grind their teeth (bruxism), although many people habitually clench orgrind their teeth and never develop TMJ disorders.

In most cases, the pain and discomfort associated with TMJ disorders is temporary and can be relieved with self-managed care or nonsurgical treatments. Surgery is typically a last resort after conservative measures have failed, but some people with TMJ disorders may benefit from surgical treatments.

Symptoms

Signs and symptoms of TMPain or tenderness of your jaw

• Pain in one or both of the temporomandibular joints
• Aching pain in and around your ear
• Difficulty chewing or pain while chewing
• Aching facial pain
• Locking of the joint, making it difficult to open or close your mouth
• When to see a doctorSeek medical attention if you have persistent pain or tenderness in your jaw, or if you can't open or close your jaw completely. Your doctor, your dentist or a TMJ specialist can discuss possible causes and treatments for your problem.                                                                                                           

There are many potential muscle relaxants that can be used for TMJ.. Chloe at birth was diagnosed “Floppy Infant” with a weakness on the left side of her neck, Her left side of her body developed asymmetrical to her right side. The jaw issue could of developed in her upper back that caused her to have tightness in her jaw and neck down to her shoulder..
We discuss these issues with her neurologist, Along with her medication two anticonvulsants that deal with nerve pain and a muscle relaxant to loosen up her TMJ issues.

Chloe still has bouts with headaches then remission periods much less intense headaches and then when we started.  These headaches are like cluster headaches.These headaches are all on the left side if her body, neck and head. Her left eye droops and she covers her eye with her hand becaus she does not want to see all the the lights in that eye. The new muscle relaxer has lessen the severity and helps shorten the duration of the headache.

We knew we had the right treatment every increase in medication or change of one to another. She started speaking in sentences and she started helping give more information to her doctors to aid in her treatment. We found she remembered a lot from her childhood but could not expresswhat she knew till she started this treatment.

2019 Busy Successful year moving in right direction!

We had a a busy year with the death of an elderly family member and settling the estate! Combining that with health issues of other family member this year flew by!

                         2019 Medical events
May 2019 Chloe’s bloodwork showed the liver levels that were high went down significantly. Her medication maybe adjusted to the right levels. Next appointment in December 2019.

August 2019, Saw the neurologist to review her progress. He was impressed she was talking in complete sentences and very present through the whole appointment. She asked him if she had to see the other doctor next. He talked to us about not changing the medication due to the higher the dose the more side effects is possible with this medication. We agreed and he said he would like to see her in a year to see how far she processed. He was happy to see her blood work because it is a big help to monitor this medication.

October 2019, Chloe went for her annual eye exam. This time she understood or could see the difference on her deep perception test and give correct answers to the person administrating the test .

December 2019, The Blood worked showed continue decrease of her liver levels continues not yet in normal ranges but getting there. Liver specialist was pleased with her progress.

Chloe does not get tired quickly as before. We do eye/hand coordination computer games besides other educational  videos and working on the computer skill building. We are much farther along  educational then we ever thought possible. She still have headaches but much less and less frequent but we have medication from the Doctors to work with these headaches. Chloe health has improved but hopefully will continue to improve the more she stays on this migraine/seizure medication..

The cranial nerves all 12 of them need to be treated by neurologist trained in that area, so they are familiar what medications work the best.
Any questions my email is : jskubal.anderson1953@gmail.com

Chloe update on her progress

Sorry it took so long to update! We have been busy with other personal obstacles that kept us busy!

The increase in migraine medication help us decrease the muscle relaxers. Her blood work showed a decrease of liver levels to normal ranges. We went up to our cottage for vacation she enjoyed it but tired easily. Weather events still is a problem for her headaches and her asthma. This is the first month she has not woke up with her couple times a month 5am headache!

She continues to work on her communication skills and range of motion at the YMCA that also in the past has triggered headaches! She continues plans out her outing and gets what she needs on these outing. She watches videos of half lectures at a time of different subjects like England, drawing, gardening and New Testament.

Two areas we still have issues with is when plans have to change and she has to adjust to the change and her ability to express her needs and wants calmly., Chloe is now able to be reason with so we can work on listening verses reacting which is the beginning stage of problem solving,

Even with the amount of medication she needs to stabilize her condition, she is still showing it helping her cognitively development! So her recovery continues!

Tools to help medication work better!

Chloe treatment for her condition mention on the previous page,Is the use of medication that blocks migraines and another that treats serve migraines. She also uses a muscle relaxant  to relax certain muscles in her body which is to relieve the spasms and increase muscle tone. 

Tools she is using to help lessen the intensity of her headaches is “slouchy Beanie hats” which lessen the intensity if her temporal facial pain. Chloe also uses “max strength Lidocaine” a roll on used mostly on the temporal areas and forehead. She uses glare resistant glasses without prescription either glasses  or sunglasses and gloves with finger tips exposed that have magnets running threw the gloves.

These extra tools help on car rides and community outings. Where before she talked a lot and seemed uncomfortable now sits quietly and enjoys the ride.

Blog:jacqueline -discoverytrail.blogspots.com

Symptoms and treatments to help Chloe recover?

    Chloe treatment is working with one medication to prevent migraines and one to treat severe migraines . She now sees the neurologist  every 6 months to talk about what is working and the Doctor make adjustments needed. She is working on  at the YMCA range of motion exercises to see if these migraines are still triggered by motion like they were before.

Chloe was born a Floppy Infant which means she has low muscle tone. She felt limp in our arms,like a rag doll. Chloe was a fast growing child, who has a T-shape body were  two other issues that did not help her with this condition. At school she would cry a lot was the main issue teachers dealt with her.
Chloe, we now know was in chronic pain and could not fit in the small area and desk due to her size.

So it was time to homeschool and start looking for ways to get the proper treatment for what ever this condition is. The neurologist introduce her a medication that treats peripheral neuropathy. Chloe shoulders are asymmetrical so this showed improvement in her behavior, and her improved
interaction with the world.
The next we tried to figure out was why she had so much chronic pain in the forehead and Temples which caused a serious issue with grinding her teeth. The neurologist she was seeing did not have any answers to what was causing this facial pain. Her dentist used Botox which helped people with this grinding issue. Chloe got 8 Botox injection to different areas of her face. Chloe was laughing and giggling all the way home. I began to question doctors “Why would anyone be so happy to get 8 shots to the face”! Problems return in 6 weeks , so we did the Botox injections again and got the same response from it but the problems came back in 6 weeks. Because of the cost of Botox and short term reduction of pain we need to see what other options we have.
We found a neurologist that is familiar with Cranial nerve issues and he introduce us to this medication that works on the facial issue we mention. We continue to work on adjusting this medication.
So Chloe is being treated for a malformed nerve bundle on the left side of herupper back and Cranial nerve issues that causes her face pain.

What Causes Strokes in Younger Adults

This is a case study of me! What to look for if you are more likely to have stroke issues?  Factor V Leiden is a mutation of one of the clotting factors in the blood.  It increases my chances of developing abnormal blood clots most commonly in legs and lungs. I received two faulty genes (one from each parent) which gave me an increased risk of these abnormal clots. I also have B type blood which is more common to get clots.

Women have an increase tendency to develope clots during pregnancy and taking hormones. I had a much older then me cousin who died early and they blamed it on the Birth control pill she was taking! I experience a stillbirth probably due to a blood clot also!

I have been on anticoagulant medication for 16 years now.I am on a blood thinner ,cholesterol reducer ,and a blood pressure medication. Within the last 5 years,I had inserted a filter into  my lower vena cava a filter to block clots from getting to my lungs. I also have a problem with aspirin when taking medication with aspirin components that I had uncontrollable bleeding episodes.

I was told once I start to develop clots  the easier it is for Clots to develop. I decided to go with medication and preventative treatment and so far it is working. I check with my Doctor for all Medical and dental procedures!

Deep vein clots in leg symptoms:                      
Pain.                                                                    
Swelling.                                                              
Redness.                                                              
Warmth.    

Clot travels to the lungs:
Sudden shortness of breath
Chest pain when breathing in
A cough that produces bloody or blood-streaked sputum                                                            

I will attempt to do a case study of my daughter’s symptoms so you can see how the symptoms got us to this point!

Migraine headache update in our unpredictable winter season!

Saw the neurologist in the beginning  of  February. I let him know what we found out so far.
1. Headaches are still present but the intensity of the pain has greatly decreased.
2. Since the previous visit it seems like her issue steadily calm down.
3.Cold weather makes her headaches more intense (single digit temperature , wind chill).
4. Other atmospheric events also  trigger the headaches (Full moons, hurricanes etc...)
5. She still have problems with crowds possibly the crowd will trigger her headache and it has in the past.
6.On this medication she can actually track with her eyes better(look at her feet while she puts on her sockets and shoes.

Chloe now wear glare resistant glass and is beginning to strength her eye control. Her vision specialist who worked with Chloe before this medication and now encourage her to see what she can do with the improved eye control. Chloe is listening to 30 min lecture on different subjects that she is interested in. We are slowly increasing her time doing this. She needs to strengthen her eyes endurance.

The neurologist increase the low dose she is on to slightly higher dose. We will report back to him what we see different with the slight increase in 6 months. I am researching  “12 Cranial Nerves”too!

New treatment approach!

We switched Chloe to a neurologist who treats adults.  After talking with Chloe and her pointing to the areas that hurt, he decided to prescribe a medication that treats epilepsy but also used for migraine prevention Along with the medication she already uses to treat severe migraines another epilepsy medication.

After 2 months  of this new medication regime, I think I can say 75% of the headaches and headaches pain are gone! Also the intensity of the headaches she still have, the head pain has lessen also.

There was a question that the medication could have a negative effect on her vision the one for migraine prevention. The vision doctor she has seen for many years thought in a routine examine it may of made her vision a lot better.

We sent a note to the previous neurologist she had seen thanking her for pointing us in the right track!

All of us never would never guessed Migraines would be the problem!

New neurologist different treatment approach

Chloe saw a different neurologist, his area of expertise is in adult neurology,neuromuscular and neurophysiology.Chloe discussed with him the burning scalp on the left side of her head, One
eye unable to open the eye lid  for a period of time while having a migraine and the throbbing of her forehead on the left side and uneven eyes or face distortion when these headaches are occurring. Also waking up between 5am and 7am with throbbing pain in her head and goes back to bed after getting a muscle relaxer and topical pain relief placed on her forehead.

He gave her a preventive therapy to reduce migraine frequency. Chloe headaches were not responding to acute treatment so sometimes preventive medication works better. He gave her a low dose to be taken at bed time.
We have seen steady improvement she is in less pain sleeping through the night. If she has a headache it seems much less intense so far.
She saw an eye doctor this week. He actually felt her eyes have improved and no side effects noted from the use of this medication.

Timeline Uncovering a unique Physical-Neurological Disorder

June29,2018 Botox Treatment

                                                Botox treatment
Chloe received her first Botox treatment on April 30,2018. She received 2 shots in each temple and 2 shots in each jaw joint. This was an attempt to stop her teeth grinding caused by facial pain! We were surprised at her reaction. She giggled all the way home and was unusually happy said she really liked how it felt.

She started complaining about her forehead pain about 2 weeks after. I kept track where on the forehead I put the topical pain ointment which seem to be in the same place on the forehead I put It most of the time. Orajel servere was put on the upper gum line above her teeth. When I mentioned this to the oral surgeon he suggested we meet to treat these areas I mention. This appointment was set for May 30,2018.

Before that we went up to our cottage and spent 4 days sight seeing. My husband comment that this was the best vacation she had and Chloe agreed she loved it too!

Chloe saw the oral surgeon on May 30, I pointed out the area above each temple and above the eyebrow that she consistency has problems with. He applied Botox to these areas and the jaw and temple areas. Everyone saw her smile and how quiet she was responding to questions ask of her. It was another significant relaxing change after Botox. She did awake at 12:30 in a panic and needed to be talked down. In the morning she felt like throwing up and unable to make a decision.. The week after the second Botox injections she needed more topical pain medication and I even tried the tens unit pointing the probes at the lowest power for 15 minutes a couple times a day till the pain subsided..
Now she still has face pain but much less intense. Muscle relaxers and topical pain relief works the best with now occasionally using the tens unit to aid in reducing the pain.

Now we check in with the Oral surgeon monthly assessing if the pain os increasing or not. If the pain comes back like before treatment we may need to consider another Botox treatment due to increase facial pain! So far we are in the monitoring stage. I will try to keep you posted monthly in our progress

Treatment of Nerve Pain and Nerve Damage

For 26 years we tried to identified this problem that Chloe had that was greatly impacted by her growth and body size and shape.

Chloe was diagnosed a”floppy infant” with the weakness on the left side most notable, because of this we suspected it could  of been a stroke or some genetic weakness on the left side upper back.

Nerve damage has a wide array of symptoms and it depends on the location and type of nerve. The nerve pain can occur in youe brain, spinal cord and peripheral nerve which are located through out the rest of your body. Chloe’s was more sensory nerve damage and had symptoms like pain,sensitivity, numbness, tingling or prickling, burning sensation and problems with positional awareness. Of the more then 100 different types of nerve damage each has many different symptoms and may require different types of treatment. There is an estimated 20 million Americans suffering from peripheral nerve damage and more interactive with othe



Chloe saw a neurologist for around 10 years for headaches and generalized pain. When Chloe became an adult the Doctor prescribed and anticonvulsant which also treated nerve pain and muscle relaxers. We found her more positional aware , interactive with her world. She also talked about things she remembered from her past even when she had problems interacting at the time


While Chloe was going through this she had 4 wisdom teeth and two moles removed. She was still had excessive teeth grinding and facial pain. She also grimace like she still had facial pain and headaches. The neurologist gave her a prescription creme to use on her forehead to block nerve pain she had in her forehead. The oral surgeon suggested we try orajel as many times as needed. This was over the counter but triple strength. When Chloe was having problems I applied it to the gum line just above the upper teeth. She said that really help but not for long. The oral surgeon then suggested Botox injections he does for people who excessively grind ther teeth! We agreed but this will need to
be done 3 to 4 times a year and cost would be out of pocket. We are still trying to figure out if we have the right dose but Chloe said it was a big help and I guess she confirmed we are on the right track.
 We continue working at the YMCA with Chloe Trainer to loosen up Chloe shoulders.upper back and arms with range of motion exercises. Also we work on understanding how to act with community intergration activities and what needs to be done in each situation,

This is how we dealt with nerve pain Chloe is experiencing!

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We may of found what we were looking for!

S

     Since Chloe's birth 25 years ago, we have been trying to figure out Chloe's weakness on her left side of her neck and shoulder in hopes she could recover  from these weaknesses.

Getting a team together was the first step. Finding a neurologist was the first team member. She saw Chloe  every 3 months and we would call with updates at the start. Hearing what we had to say, she may adjust Chloe's medication or make other recommendations. She encouraged me to take pictures of what I was talking about and get better  at describing what we saw to help her see what we were seeing. Second member of the team was Molly who worked with Chloe at the YMCA. She has a bachelor degree in Kinesiology (the study of mechanics of movement and her Master's in sports administration was helpful to. The third was her dentist who removed 3 molars and 4 wisdom teeth during this time also!

Chloe had this unexplained weakness on her left side since birth that could of been a genetic malformed nerve bundle that would even cause her to collapse on the floor at the start. We worked with Molly to develope an exercise program to get her shoulder to navigate her arms around and away from her body without trigging headaches and to build endurance. Her Doctor was a big help lessening the intensity of theses headaches through medication.

Sessions would have Chloe sitting on an exercise ball and Molly standing next to her ,she would position the ball in different areas around Chloe.This was to see if Chloe could reach , grab the ball in these areas, then do it several times in a row. We called this ball therapy but the ball was a tool to check out Chloe's shoulders range of motion. We used this technique to see if her shoulders could position the arms where we wanted her to and how many times could she repeat that.

Then about a year and a half ago and since Chloe was an adult, the doctor suggested she try a epilepsy medication that is used for partial seizures and neuropathic pain. This took about a year to find the right dose. We saw a steady improvement with the use of her arms , reduction in headaches , endurance and cognitive ability.

Our last appointment we gave the Doctor a positive report and now Chloe will see her every 6 months.Chloe can now accept schedule changes like everyone else, before she was hysterical about any schedule changes even the smallest changes. She is now able to tell us when her back hurts. Chloe can tell you what happen in the past and what caused plans to change. Her pulse, blood pressure and breathing (asthma) are within normal ranges.

Molly's report summed it up that Chloe's range of motion has improved  and she is able to perform most exercises without looking like she is in discomfort,

Recovery continues!

November  30,2017

Chloe is making recovery work with this medication that treats epilepsy and neuropathic pain. She still has headaches but less frequent and less intense. She is giving us more information  as to issues  we need to work on. We go and do community errands every day. Chloe works on finding the items we need paying for them and getting a receipt. This works on her language skills and knowing what is needed to purchase items. We may park at a short distance from where we are going and practice how to cross the street with street lights and without lights. She is a concrete person that had to be convinced she did not have to listen to Christmas music all the time but could take breaks and listen to regular music too.

She sees her fitness instructor for her adaptive fitness sessions. They work on exercise that Chloe has to follow directions, like touch the wall with your right hand or reach to the ceiling with your left. She is improving in following directions and improve her body awareness. We are also working on getting her to understand to ask questions and first demonstrating what kind of questions she may want to ask.

Chloe has headaches but much less intense . Her eye site is acute what I see as a line on the eye chart she sees letters and can tell the eye doctor what the letters are. I have to ask if she got them right and the eye doctor says "Yes"! Her teeth seem to be the major health issue. We really do not understand  why but after the removal of 4 wisdom teeth and 2 molars it still is an issue. Dentist suggests to stay away from baking soda or whitener that seems to be part of the problem and is helpful. Straightening her conversational speech and ability to follow directions  continues

Is the treatment working?

Medication is working with  minor adjustments.The medication that treats epilepsy and Neuropathic pain has been the major stabilizer of this disorder. When these headaches do occur an NSAID that is non-steroidal and anti-inflammatory is very helpful. She is on a muscle relkaxer daily that prevents the spasms, cramping and tightness of muscles from escalating . When she goes on long drives or other activities that trigger motion sickness she wears a patch behind her ear to prevent these headaches from starting.

Her teeth have been an interesting factor to these headaches. Chloe has had 4 wisdom teeth and 2 molars removed which has seem to lessen the intensity of when headaches occur. Chloe use to grind her teeth contiuous but now grinds her teeth pre and during headaches is still noted but with less intensity and topical pain relieve seems to work the best.Headaches seem to be trigger by her menstual cycle, eclipse, and other weather event. Her left arm and shoulder when she uses them tended to trigger these headaches. Her work on stretching her left arm and shoulder muscles with her trainer at the YMCA . It has helped to decrease the intensity and improve use of left arm and shoulder alone and in unison with her right shoulder and arm!

Chloe is challenging these headaches by Community integration activities. She does "errands"in the community and works on making purchases and making a list of tasks each day and be ready to use plan B if something is preventing the completion. We are always looking for other activities that will challenge her endurance.

This maybe a malformed nerve bundle in her back that is possibly a genetic abnormality.

Vestibular migraine

One of the more common neurological conditions is a migraine headache but some people don't even consider it a disease. My research has shown me that migraines often involves more than just a headache. Visual aura can be the person sees flickering light spots sometimes with dark holes inside or zigzagged light flashes like lightning. The visual aura tends to appear about 15 minutes before a headache. Many people don't realize there is also an association between migraine and the inner ear and the brain mechanism that influence hearing and balance.

Classic Symptoms of migraine are severe throbbing headache on one side of the head. Chloe's headaches were only on the left side of her head the phase "lopsided headache" was used to describe her headaches and other symptoms she complained about were only on the left side of her body and head.First diagnoses suggested was Menderes Diease later ruled out. Other symptoms she experienced were: Nausea and vomiting, extremely  sensitivity to light and noise, and the need to go to a dark and quiet room to sleep.


Vestibular Symptoms are: Vertigo, Imbalance Dizziness,Unsteadiness, Extreme sensitivity to motion and Hearing Symptoms. As a child Chloe saw a neurologist for possible seizures. The neurologist ruled out seizures but Chloe seem to fall on the floor and thrash back and forth for no reason. The medication she is on to treat headache and partial seizures with the other medication to prevent nausea and vomiting due to motion sickness seems to be greatly helping in this area.


Otis Migraine comes from the word meaning ear, and often occurs without headache. We questioned
If Chloe had hearing loss because her speech developed uniquely like  she was talking like under water. We got her reading,to help her enunciate her words better. We also found out later that she had tinnitus in her left ear that lessen with medication and her enunciate of words and sentences improve too. She saw an OtoLaryngologist (ENT)till about school age trying to figure out her hearing and speech issues causes. Hearing comprehension of the spoken word and her enunciation has improves with the medication she is now on.

So Chloe migraine treatment has seem to help her understand the spoken word, improve her communication skills and strength her endurance . One side of our family has migraines and the other side has vestibular issues so this treatment actual makes sense.

Neuropathic Pain

For 25 years we have been in pursuit of why our daughter was diagnosed floppy infant and had a general weakness  on her left side that caused her to have a left shoulder to be asymmetrical in shape to her right shoulder since she was born. Then she was put on a seizure medication used for epilepsy and neuropathic pain that has greatly improved her quality of life. This chronic pain state usually is accompanied by tissue injury. These nerve fibers themselves may be damaged, dysfunctional or injured. The damaged nerve fibers send incorrect signals to other pain centers.  Because of the tissue damage she was put on  a muscle relaxer with this medication which seems to be a winning combination.

Looking through several disorders symptoms lists I found the closest symptoms to match up with her disorder was Fibromylgia. So besides the symptoms mention above that she was born with here are some other symptoms.

Morning stiffness: Chloe needs time to get started in the morning and time for her medication
to works!
 Headaches:   Chloe's most intense headaches seem to happen the period of 5am to 9am. Medication has helped to lessen the intensity. She has less intense headaches during the rest of the day which shows her medication for pain management helping her do more things. She is able to describe her headaches and beginning to ask for what she needs before resuming her activities.
Fibro Fog:Her memory problems and cognitive problems have signification improved with this
 medication combination.
Sensitivity to Loud noises or bright lites:This has also improved with the mediation combination also!

This is what we see so far! Jacqueline

Alternative treatments

We are on a journey of exploring what works on Chloe upper back nerve issue condition. The problem causes headaches, weakness on the left side arm, shoulder neck and face since birth!

Here are some treatments we are working on!

             Dentist/Oral Surgeon: Chloe had 4 wisdom teeth and a molar removed in 2015 in a hospital setting. After that one of her left front teeth cracked off due to excessive grinding. I took a while to find another dentist. Then I got lucky and found a dentist who also worked 2 days a week as an oral surgeon. He found the tooth that cracked off was infected and gave her antibiotics. Chloe is going to get a root canal in his office after. She is on a seizure med that deals with peripheral nerve damage that now lets  Chloe lay on her upper back in a dentist chair without significant pain like before so she can have the procedure done in the office dentist chair!

            Another Treatment we are checking out is light Therapy for Seasonal Affective Disorder also referred to as winter depression.  

Symptoms are :

Apathy, Fatigue,Sadness,Irritability, Weight Gain, Lack of Energy, Increased sleep, Carbohydrates Craving, Difficulty in Awakening, Decreased social Activity

Both my Kids were tested to be Vitamin D deficient and have at least one or more of the symptoms mention above.

Treatment is they are in front of light box that emits intense bright light.The light enters the eye, hits the retina which sends a nerve impulses to the pineal gland which controls melatonin secretion. 

So far both our young ladies sit in front of this right for 30 minuates and really seem to enjoy it. One likes to read the other is on her computer during the light Therapy.

Tens Unit is still used for pain management issues but now is on an as needed bases.

Chloe also works at our local fitness club with her adaptive personal trainer working on core issues and using her arms without headaches

2016 recap and 2017 update!

Life in 2016 had us take a break from these updates and taking care of life!

Natasha has been working since the end of August with people she is friends with. She finds the work interesting. She is also working on what it means not to have a gall bladder and what that all entails also pondering what is next in her future.

We also dealt with the illness of a relative then the unexpected death! My asthma medication needed to be increased but of course it could not possibly because of  Global warming . At least if you believe the Republican logic! Then I got an upper respitory virus that lasted about 2 months. It was having a major argument with my asthma! With all the coughing and sneezing I fell and sprained my big toe that I am still recovering from. Crazy year of manageable obstacles that had to be worked through!

Chloe has been on this seizure med that deals with the nerve damage in her back for now over a year. She appears to be in less pain because she comprehends the spoken word has improved and follows  directions also improved. She is working with an Adaptive fitness trainer . She works on her social skills, her ability to follow directions and appropriate social interaction.

The tens unit has help her nerve problem in her back. She uses it 10 to 15 minutes 3 times a day. The probes are put around the base of her neck in the middle part of her shoulders. This seems to improve things too.

Our goals are continue to assess if we have the correct medication and the correct use of the tens unit.
This problem could be a genetic defect in a nerve bundle in her back that she was born with. Doctors are still not ruling that out as a possibility.


Jskubal.anderson@yahoo.com

Migraine without aura and without status migrainosus not intractable!

Chloe had her 3 month medication review with her Neurologist to review the medication and make adjustments.

I shared with the the Neurologist some of Chloe's issues in these past 3 months. She had intense pain in her left front tooth which caused her to crack it. I learned this could be from diffuse pain which means it is spread out over a large area, not concentrated. We shared that  Chloe still has  headaches on Thursday and or Friday several times a month. She is able to be reason with and work through issues easier then before the nerve pain medication. Chloe is also able to open her mouth wider then before. We also have had 2 vacations up at the cabin and she enjoyed sight seeing !

Showing no negative side effects to this nerve pain medication, her Neurologist suggested that it was time to go up in dosage to address some of these problems that were mention in previous paragraph.

Today we went to get a Wisconsin State ID.  Chloe handled the group of people very well and we were out of there in 30 minutes, She awake with eyes half shut and complaining of a headache. With this medication for nerve pain she was still able to complete what we need to complete.

We will see the doctor in 3 months. We will also call the Doctor with our progress every 2 weeks.

Any further questions contact us at; jacquelinediscoverytrail@gmail.com