For 26 years we tried to identified this problem that Chloe had that was greatly impacted by her growth and body size and shape.
Chloe was diagnosed a”floppy infant” with the weakness on the left side most notable, because of this we suspected it could of been a stroke or some genetic weakness on the left side upper back.
Nerve damage has a wide array of symptoms and it depends on the location and type of nerve. The nerve pain can occur in youe brain, spinal cord and peripheral nerve which are located through out the rest of your body. Chloe’s was more sensory nerve damage and had symptoms like pain,sensitivity, numbness, tingling or prickling, burning sensation and problems with positional awareness. Of the more then 100 different types of nerve damage each has many different symptoms and may require different types of treatment. There is an estimated 20 million Americans suffering from peripheral nerve damage and more interactive with othe
Chloe saw a neurologist for around 10 years for headaches and generalized pain. When Chloe became an adult the Doctor prescribed and anticonvulsant which also treated nerve pain and muscle relaxers. We found her more positional aware , interactive with her world. She also talked about things she remembered from her past even when she had problems interacting at the time
While Chloe was going through this she had 4 wisdom teeth and two moles removed. She was still had excessive teeth grinding and facial pain. She also grimace like she still had facial pain and headaches. The neurologist gave her a prescription creme to use on her forehead to block nerve pain she had in her forehead. The oral surgeon suggested we try orajel as many times as needed. This was over the counter but triple strength. When Chloe was having problems I applied it to the gum line just above the upper teeth. She said that really help but not for long. The oral surgeon then suggested Botox injections he does for people who excessively grind ther teeth! We agreed but this will need to
be done 3 to 4 times a year and cost would be out of pocket. We are still trying to figure out if we have the right dose but Chloe said it was a big help and I guess she confirmed we are on the right track.
We continue working at the YMCA with Chloe Trainer to loosen up Chloe shoulders.upper back and arms with range of motion exercises. Also we work on understanding how to act with community intergration activities and what needs to be done in each situation,
This is how we dealt with nerve pain Chloe is experiencing!
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