Thursday, January 30, 2014

Lots have happen this month let us see if I can put it into words.

UPDATE!
1. This appears to be a nerve problem due to the pain patches and topical analgesic work the best and main focus is the forehead. We are also putting pain patches on the forehead now.
2.The Neurologist gave Chloe a stronger focusing medication which helps to get better descriptions from her.
3. Chloe is able to show me where she wanted the Tens Unit and the pain patches ended up in the same area. I would never imagine them there.. Thank again, for Chloe's improved ability to tells us where it needs to go.
4.We also have used stronger stomach medication and find the headaches are improved when also treating the stomach at the same time.
5. Cold weather is also a trigger so Chloe has started to where a lined cap pulled halfway down her forehead to protect the area in question. She has gone out in some very cold weather with out falling apart afterward with the use of this cap.
6. The stretching exercises she does with her fitness trainer Molly the Neurologist feels is stretching out the nerves in her head and shoulders.  Because of medication she takes the nerves are not enlarged like they were so they are being strengthen to respond normally.
7. With more details from Chloe we can share with her Doctor what is working and what isn't and thankful for the Neuropsychologist recommending focusing medication for her to begin with

We continue to make corrections but have seen a great improvement in her condition that she  has been dealing with since birth.                                          
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Thursday, January 16, 2014

Neurologist Appointment and goals for the next 3 months

                           
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Every time we go for Chloe's Neurological appointment the Doctor is pleasantly surprised and happy with Chloe's progress. I explain the exercising Chloe is doing at the Y with her fitness trainer. The Doctor liked it and said now the swollen nerve ending were not swollen we were stretching out the nerves in her head, neck and shoulder areas and getting them to work in the right way to the best of their abilities.

Doctor is concern some of Chloe's pain medication that could be causing stomach issues. So we developed a plan to work on that. She adjusted her other medication and suggested I give her an update in 2 weeks how things are going and of course sooner if needed.

In 3 months we will check in with the Doctor again but I will call her with updates or if we are having any problems for suggestions.                                                                              www.chloethekinesthiclearner.com
                                 

Saturday, January 11, 2014

Identifing the symptoms of this disorder!

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It has been over six months since the neurologist gave Chloe an old time antidepressant that is known to shrink enlarged nerve endings. The medication caused her to have greater range of motion in her neck and she had better use of her left shoulder and arm. Chloe is able to open her mouth wider then ever before. She is now able to talk about her issues which we complied on a sheet of paper and will take it in to discuss with her Neurologist this week and how we can manage these symptoms better.

She is seeing Molly her fitness trainer to work on getting her arms to work in the space around her body twice weekly. Her self care skills have shown improvement.Our goal is keeping her other skills up while we improve her arm control away from her body and start off with a very part time job. Being in much less pain we have seen her academic skills improve also. We did tell the doctor that we had over 14 issues to discuss with her and she said it appears the medication is doing it's job.