Monday, August 29, 2016

Unique treatment for Unique disorders!


This update will be giving you a view of how Doctors deal with these unique disorders!

Natasha has finish treatment for her Mirizzi Syndrome and had her gall bladder removed. She has just started back to work  and is adjusting to a 40 hour work week, She has completed treatment and now trying to figure out what to do with the rest of her life.

I too have a disorder found after our kids were born. The medical field did not have a way to test for it till 7 years after our last child was born. I have Factor V Leiden homozygous which is the most serious form of this disorder. I have a blood clotting disorder and I have had blood clots. But if I take aspirin based medication I have hemorrhaged.Now I am taking a non-aspirin base  blood thinner, and have a Inferior Vena Cava filter. Medication has greatly stabilized my disorder and my health greatly improved with this proper treatment. I have allergies and asthma and am treated for this too.

Chloe our youngest has a different medical issue. She was born with a weakness on her left side of her body. At 9 months this weakness,  was described by her  first neurologist she saw, This condition could be  caused by a malformed nerve bundle on her left side. Her left shoulder is asymmetrical  to her right side with forehead issues, teeth and neck issues all on her left side. With exercise and medication for nerve pain  we are seeing Chloe able to interact with her world and express her opinion. This medication has shown us that pain was her  predominate issue, She is also being treated for allergy and asthma issues.