Chloe was born a floppy infant and needed rehabilitation therapy to sit, walk and all the growth milestones, She was the one doctors said had the biggest problem because she is 5 feet 9 an a quarter inches with a T-shaped body. The doctor said if she was only shorter or have a different body type this condition would be lessen. When she went through growth spurts her symptoms got a lot worse but symptoms seem to get better when she came out of the growth spurt.
Chloe has been working physical therapist, occupational therapist and a neurologist who have a theory that some people with chronic headaches are triggered by upper back issues. She has been working with this group for around 5 years;
So the Doctor suggests this is a spinal cord issue causes back spasms and chronic pain in her fore head. This problem also has a focusing problem which causes difficulty with her sleep cycle and awake cycle. Chloe was given a muscle relaxer for spinal cord relate muscle crapping issues. Also she has been taking medication to improve her awake and sleep cycle. She is icing her 15 to 30 min. a day.
The combination of medication is very promising and I am documenting for the Doctor the symptoms Chloe describes and what we use to lessen the intensity. This stage has seem to finally steer us in the right direction. She is using less pain medication and Chloe is doing slowly more and more different types of activities.
The daily log of symptoms and what works and what doesn't is helpful for the doctor to see what is the many faces of this illness.
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