Chloe is being treated by a Neurologist for a spinal cord injury that she was probably born with that causes chronic headaches. She is put on a muscle relaxant that is used for the treatment of spinal cord issues so far it looks promising.
I submitted a daily log for the past week 6 weeks describing our days for the Doctor so she could see what we were up against. The prescription pain patch I put on her back where two of the physical therapists said they felt a knot in that area. Chloe sounded totally relieved and now points to her back as a primary concern and asks for that patch in that area since. After the long drive to the office Chloe laid flat on the exam table and had an ice pack under her head and did not exhibit the anxiety they were use to seeing out of her. Long drives also trigger these issues.She voiced her opinion on all the questions the Doctor ask. Chloe was a big help in demonstrating that we are on the right track.
Symptoms we know so far:
- She was diagnosed a floppy infant at birth.
- Had to receive rehabilitation services to meet all her crawling, walking and so on.
- Size and shape matter: She is 5 feet 9 inches and has a T-shape body. Doctors told me the smaller the less severe the problem seems to be.
- Chloe spends a lot of time at a desk top Computer where she reads on many different subjects. We go on errands in the community and walks seems to stretch out the problem area which is helpful too.
- Chloe bought a new bed for herself so when she has problems we may find her stretched out in her bed watching TV too.
- Chloe on I work an hour or two a day on I Pad games and on Laptop for email and Facebook the goal is to get her familiar with the different times of Computers and see which one she will be the most independent with.
We are hoping to improve her stamina so she can get a part time job like she wishes to. We hope to get back to the YMCA to work on stretching the arms out the Neurologist suggested not over head but from the shoulders down would not aggravate this condition.
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