Looking through the many pictures of our journeys. This nerve issue in her back surfaced the more she grew so sometimes like in this picture the nerve prevented her arms from working properly but overall she passed for a normal kid then the growth would happen and that caused set backs. When she had these episodes that we know are triggered by muscle spasms in her upper back occur or she over reacted because she thought it might happen . This would trigger this chronic forehead headache that still are present but the intensity now does not make her drop to the floor. The medication she is using is for spinal cord injury that cause these muscle spasms.
We are entering the next phase. We are back at the YMCA working with Molly arm stretching below the shoulders. We are starting out slow 15min stretching then see if she has any problems the next couple of days. If she does well then move up to 30 min. We are hoping through movement of the arms the headaches will not be triggered as much by keeping that area of the back loosened up. Wish us luck!
I am keeping a daily log that I will report back to the Neurologist on Chloe's progress and setbacks.
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