How Far We Have Come!

                                       
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 The neurologist who saw Chloe on July 1,1993 described her this way. I saw Chloe for evaluation of developmental delays and hypotonia. Early milestones were markedly delayed. She did ,however, sit up by 7 months and has not crawled yet.  On her abdomen, she pulls to her hands, but does not attempt crawling. When she started physical therapy, it was noted that the left side was weaker but showed improvement with therapy. Currently, she moves around the room by scooting. On the other hand , she appears to be very verbal and repeats several words and uses 4 or 5 words spontaneously..

Fast forward to today, Chloe is being treated for a nerve issue on her left side of her neck ,left shoulder and tinnitus in her left ear .She is being treated with two antidepressants one that replenishes the serotonin in her body  and the other antidepressant  shrinks swollen nerve ending.  Her complaint was headaches that caused her to collapse on the floor in pain. She still has headaches but they are much less intense and we are beginning to get her to describe them so we can report back to her neurologist. Chloe is 5 feet 9 inches and has a T-shaped body which aggravates this condition also.

Our daughter at birth was diagnosed a floppy infant at birth. We would like to share how we got to this point and what we are working on right now. Chloe is now trying to figure out what job would work with her health issues .

Please let us know if we could share our story with other families who are trying to understand their child’s health issues.

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