HOLIDAY SEASON 2011 Update December 21, Chloe had a MRI of her brain stem and complete spine. She had this done at Chldren's Hospital and they organized and handle it with precision that was amazing to watch. December 22 , Chloe had the appointment with her neurologist. The neurologist said the results even surprise her, that everything appears normal. Considering Chloe's difficulties since birth and being on pain mediation she could only conclude it is a nerve issue. Peripheral nerves carry information from the brain. It maybe one group of nerves or all that effect the body. The neurologist suggested we try a mediation that contains a small dose of serotonin that she takes daily to help get information from the brain to her body working better. Chloe's has complete control of her arms when the upper arm is right next to her body. The farther away from her body the less control of her arms and hands she has. Then you add the slightly elevated left shoulder this is all possibly due to peripheral neuropathy. From the first day on this small dose of serotonin we have seen less hearing ans sight sensitivities. She is able to identify tingling or burning mainly in the left shoulder and forearm, hand and upper arm area. Chloe will meet with the neurologist monthly to evaluate how the medication is working. She will continue working on getting her arms more usable. With this medication she is now taking half the pain mediation she has taken before and is giving us more information. For Chloe, floppy infant may be this “peripheral neuropathy” which appears to be a treatable disorder! Wish us continued Good luck! Keep us in your thoughts and prayers! Skubal/Anderson Family