HOLIDAY SEASON 2011 Update December 21, Chloe had a MRI of her brain stem and complete spine. She had this done at Chldren's Hospital and they organized and handle it with precision that was amazing to watch. December 22 , Chloe had the appointment with her neurologist. The neurologist said the results even surprise her, that everything appears normal. Considering Chloe's difficulties since birth and being on pain mediation she could only conclude it is a nerve issue. Peripheral nerves carry information from the brain. It maybe one group of nerves or all that effect the body. The neurologist suggested we try a mediation that contains a small dose of serotonin that she takes daily to help get information from the brain to her body working better. Chloe's has complete control of her arms when the upper arm is right next to her body. The farther away from her body the less control of her arms and hands she has. Then you add the slightly elevated left shoulder this is all possibly due to peripheral neuropathy. From the first day on this small dose of serotonin we have seen less hearing ans sight sensitivities. She is able to identify tingling or burning mainly in the left shoulder and forearm, hand and upper arm area. Chloe will meet with the neurologist monthly to evaluate how the medication is working. She will continue working on getting her arms more usable. With this medication she is now taking half the pain mediation she has taken before and is giving us more information. For Chloe, floppy infant may be this “peripheral neuropathy” which appears to be a treatable disorder! Wish us continued Good luck! Keep us in your thoughts and prayers! Skubal/Anderson Family

Chloe steadily improved with corrective exercises, so the nerves coming out from the spine appears to be the prime suspect in what is causing her problems. At birth, Chloe was diagnosed Floppy infant which was thought to be a neurological condition but in Chloe's case it could be a back issue! We hope to be able to see what is causing the slightly elevated left shoulder and slightly twisted trunk with the MRI scan later this month. The shoulder elevation and trunk twisting has decreased but the pain Chloe experiences with stretching exercises is noticeable. We also hope the problem can be explain and figure out ways to lessen this discomfort.. Chloe has been seeing a neurologist for over a year. At the start she was unable to raise her arms over her head or out to the sides. Her left shoulder was using, what her physical therapist said, was all the wrong muscles. She continues to be plagued with headaches and pain but theyare less intense. The neurologist gave her stronger pain medication so she could tolerate rehabilitation of the shoulders and improve use of her arms. This is the point we are at. She has better control of shoulders and arms. She has little control of her hands when her arms are out stretched but can do complicated fine motor tasks when her arms are at her sides and palms are facing the table for the occupational therapist. So the question is can Chloe hold down a job. The Neurologist said "We have to first understand the problem". So we went to the MRI clinic Chloe was asleep on her side with the sedation but when rolled on her back she woke up visibly in pain. This is why she is scheduled at the hospital so they can use general anesthesia if their sedation does not work either. Problem: Chloe has arm, shoulder,headache and muscle, issues that are caused by a back issue of some kind. December 21 we hope to understand what kind of back issue and can it be fixed. Then questions that will be answered after that? Can it be fixed? Is it a partial or total disability? What kind of jobs should Chloe consider with this back issue. Stay tune we are close to answers!