Where do we start?

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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                       What are  the medical treatment goals and how do we reach these goals?

!. First shared the symptoms we noted in the previous log  on the phone with the Neurologist's nurse. l told  her about the pictures I had of what I thought was the problem. The nurse asked me to send the pictures like the one above to Chloe's neurologist

2. Received a call back the next day referring Chloe to a Jaw specialiist dealing with TMJ pain issues. To evaluate why Chloe jaw moves to the left like that and why can't she open her mouth very wide. After the evaluation and treatment to either stabilize or fix the problem with the possiblity of surgery to fix the jaw

3. Hopefully at this level she can open her mouth and get the 5 teeth removed by an oral surgeon with the possiblity of surgery here too,.

4. This all starts July 1, 2015 when our insurance change.

5. The pain is some what controlled by the muscle relaxer and  antinflamatory medication and topical pain relief. Trying to get people to understand  Chloe acts out because of pain or fear of the situation might make her feel pain. People give me a blank stare like they can not see how the two are related.

6. Symptoms of PTSD from Mayo Clinic website.

PTSD symptoms are generally grouped into four types: intrusive memories, avoidance, negative changes in thinking and mood, or changes in emotional reactions.

Intrusive memories

Symptoms of intrusive memories may include:

• Recurrent, unwanted distressing memories of the traumatic event
• Reliving the traumatic event as if it were happening again (flashbacks)
• Upsetting dreams about the traumatic event
• Severe emotional distress or physical reactions to something that reminds you of the event

Avoidance

Symptoms of avoidance may include:

• Trying to avoid thinking or talking about the traumatic event
• Avoiding places, activities or people that remind you of the traumatic event

Symptoms that may help identify the problem

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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Chloe needs 5 teeth out but cannot open her mouth wide enough only 50% of normal, The medication cut the pain issue but only got her to open her mouth to about fifty percent, Here are symptoms that hopes to show where the problem is. We will continue to update our symptoms as they emerge

Symptoms so far.

1. Cannot open mouth to normal width

2 .But  pain did decrease  with anti- inflammatory med and muscle relaxer 

3. Quarter size red and inflamed area over left eye treated with lidocaine ointment daily.

4. left side of jaw unusual movement (Have profile pictures of examples)

5. Left shoulder asymmetrical to right shoulder.

6. When she has a  lopsided headache  she can not grasp with left hand.

 7. Sensitivity to noise and vision has decreased with the pain medication.

More symptoms 

 8. Darker discoloration of the area on the leftside of forehead  Chloe has more intense the pain.          

9.Excessive Grinding teeth noted during lopsided headache. Not usually present otherwise.

10. Excessive biting down on seat belt shoes etc… when headache issues arise  

Neurologist hopes the oral surgeon can identify what is causing the mouth not to open normally and why the pain medication is helping. 

Another piece to the puzzle!

Chloe saw a Dentist last Friday who tried to get her to open her mouth wide. He was very nice and Chloe was eager to try. She was not able to open her mouth any wider then about 50% of how wide it should get. He questioned why she could not open her mouth any wider and referred her to an oral surgeon and to stay on the medication that was getting it to this width. He said the 5 teeth could be causing this but he doubted it.

He said this could be a great out of pocket expense so the other option is to stay on the medication that is working to this point. My husband dental HMO is new July 1st and so is medical insurance. We decided to waited till July1 when Chloe will have 2 HMO Dental insurances and 2 medical insurance to cover the costs. We hope that the 5 teeth extractions  will be the problem but the Dentist warned us not to count on it.

The smile in the picture above raises more question about the  left-side  of her face the source of her pain issues that was helped by these pain medications

May 12, 2015 update

We are checking out a Dentist that works with Chloe's two insurances to get him to send in a prior authorization to both insurances so we can go a head with the extractions.

Chloe is on one medication for pain and inflammation and a muscle relaxant used to treat muscle spasms associated with multiple sclerosis or spinal cord injuries. These medication also could be controlling the teeth pain too. Her doctors are eager to see how these extraction may lessen the intensity of the pain she is experiencing.

So wish us luck that we have gotten through the insurance maze and now on the right track to get this dental surgery done;

I will post next week about our appointment at the end of this week.

Here is where we are at!

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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Middle of May is the first appointment with the Maxillofacial surgeon who has to get a give our insurance what he recommends as to how many teeth and how extensive the work he estmates will be done. We know from the Dentist they recommend 4 wisdom teeth and one molar.So we will find out at the first appointment if that is what the surgeon thinks too. The Neurologist has given her medication that helps Chloe have a normal activity level till the surgery. Topical and oral pain relievers with muscle relaxers have helped her manage so far.


Chloe is being treated for a sleep disorder and now her sister is being evaluated by a doctor who deals with sleep issues. I found this information from the Mayo clinic very helpful.

By Mayo Clinic Staff

Sleep disorders are changes in sleeping patterns or habits. Signs and symptoms of sleep disorders include excessive daytime sleepiness, irregular breathing or increased movement during sleep, difficulty sleeping, and abnormal sleep behaviors.

A sleep disorder can affect your overall health, safety and quality of life. With accurate diagnosis, doctors can treat most sleep disorders effectively.

Another twist in the road!

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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March 26, 2015 at a routine teeth cleaning we were updating the hygienist of a problem with a nerve in the head and one in the shoulder and how that was causing Fibromylgia symptoms since birth. After the appointment the hygienist called me in. He said, "We may of found your nerve problem in Chloe's head."  Then told Chloe and me the Dentist recommends extraction of 4 wisdom teeth and a molar. We were referred to a Specialist in surgery -Oral  & Maxillofacial.  We got the earliest appointment which was middle of May.

I call the neurologist to thank her for the MS muscle relaxer and pain ointment. Chloe finally showed the Dentist the back of her mouth which she was unable to do before.

This could be important surgery in Chloe's recovery.   We will keep you posted!

Looking Back!

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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Let's review where we came from. Chloe was born a floppy infant and needed rehabilitation help reaching her ability to walk , talk and all growth stages and has low tone issues. Chloe always comprehended the written word better then the spoken word.  Now the spoken and written word comprehension are almost equal. 

Working with a neurologist who is very helpful. We started to try different medications and talked about what worked and what did not work. Then I started typing up a daily log to show the Neurologist  how complicated it was.  After doing the log for a year, we now see it gave the neurologist a picture of how the medications are working also.

Chloe has  Fibromylgia like symptoms since birth which greatly interfered with her physical developed. We have found nerve issues in her forehead and left side  of her neck.We check in with the Neurologist and she reviews our progress every 3 months. Chloe has a secondary issue and we are not sure if it was caused by the nerve issues or it is a second problem completely different. She is on Neurologist prescribed doses of Iron, D3 and B12 that she may have to take daily for the rest of her life.

I am really glad I did a log because it shows us the recovery she is making.