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Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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Let's review where we came from. Chloe was born a floppy infant and needed rehabilitation help reaching her ability to walk , talk and all growth stages and has low tone issues. Chloe always comprehended the written word better then the spoken word.  Now the spoken and written word comprehension are almost equal. 

Working with a neurologist who is very helpful. We started to try different medications and talked about what worked and what did not work. Then I started typing up a daily log to show the Neurologist  how complicated it was.  After doing the log for a year, we now see it gave the neurologist a picture of how the medications are working also.

Chloe has  Fibromylgia like symptoms since birth which greatly interfered with her physical developed. We have found nerve issues in her forehead and left side  of her neck.We check in with the Neurologist and she reviews our progress every 3 months. Chloe has a secondary issue and we are not sure if it was caused by the nerve issues or it is a second problem completely different. She is on Neurologist prescribed doses of Iron, D3 and B12 that she may have to take daily for the rest of her life.

I am really glad I did a log because it shows us the recovery she is making.

A person less anxious and smiling more, due to a fabric bandage over a pain patch?

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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We know that Chloe has a nerve problem on the left side of neck that effected the development of her left shoulder. For a few years with her neurologist, I have been discussing the left side of Chloe's forehead and the pain she has from there. We were wondering if it was deferred pain  from somewhere else or actual from the forehead.

We have had a very cold February and I took cell phone pictures of the  swollen red area that emerged on her forehead and sent them to her neurologist. She thought it might be a reaction to the prescription pain ointment that she prescribed for Chloe. I  told her that the medicine rub on the spot calms it down and actual had cell phone pictures of it doing that. She admittedly wanted more details of what helps and what triggers the redness to appear and what works to calm it down or prevent it. So we are trying to get the information together for our next appointment. The pain patch moved over to where the redness surfaced and the fabric bandage keeps the area warm and away from air.  

So far we know what works keeping the area with a pain patch and a bandage over protects it from the air and cold. Molly, who works with her at the YMCA, said at the last session Chloe was all smiles threw out the session and even laughed a couple of times. Chloe seems more in control of her emotions and actually able to talk through disagreements better then without the patch.

So we are working with the Neurologist to identifying the problem or problems and if there is something we can besides what we are already doing.


   

What is this unique disorder.

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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So far we have identified 2 areas where the nerves may have been having issues since birth. Symptoms are widespread pain, fatigue but having sleep problems too. Also we working through  cognitive difficulties which includes the ability to focus, pay attention and concentrate on mental tasks and headaches with  Chloe's Neurologist. We seem to have the proper treatment that can greatly improved her quality of life.

We have made progress and learn quite a lot. We will continue to work with the neurologist to hopefully improve the treatment after this cold snap.  Her forehead nerve is trigger by this cold weather so we may need to wait to resume all the Doctor appointments the Neurologist wants us to do till it warms up a bite,

Outdoor above 30 degrees outfit

Chloe The Kinesthic Learner. How Her Health Issues Interfered with her Learning Style
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This is her above 30 degree outfit. The goal is to protect the fore head so not to trigger a headache and be able to get outside and enjoy the winter, Outdoor Theraspecs are iimportant too.

Outfit for real cold weather

Chloe The Kinesthic Learner. How Her Health Issues Interfered with her Learning Style
                                                  http://www.uniquedisorders.com/
This shows the TheraSpecs for outdoors, lined cap and coat usual zipped up when temperatures are below 30 degrees. She can move around quite freely as long as nerves that have problems are well covered.

Unique Disorder

                                         
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Chloe The Kinesthic Learner, How Her Health Issues Interfered with Her learning Style.

We have learned a lot about Floppy Infant condition Chloe was born with in these past 20 plus years.
Chloe has been seeing a Neurologist that has helped us figure out this condition and how to treat it.
This is somethings we now know the condition she was born with.

1.) First nerve issue is on the left side of neck which affected her left shoulder that developed not
      symmetrical (evenly shaped) as the right shoulder. She has difficulty grasping with the left hand and complains her hand and arm tingles and buzzes at times. The Neurologist, gave her medication to help to relax muscles cramping trigger by this nerve issue and a medication that works on reducing inflammation and another used in treatment of fibromyalgia.
2) Second nerve issue is located on the left side of her forehead. It is a sensitive area she consistantly points to when asked "What hurts?"The second area is helped by the medication used above but also the theraspecs she wears, a lined cap to go in the cold and a prescription topical pain ointment she uses up to 4 times a day. That sensitive area is effected by cold and sunlight are two triggers we know of so far.
3) We are still not sure if this is a separate issue or caused by the problem above. Chloe has a unique  placement of the veins and arteries in her arms. We were able to get blood work and found her deficient in iron, Vitamin D and B12. We are not sure she may have to take daily supplements from now on to maintain her levels.

We need to get blood work done and see a rehabilitation doctor before we see the Neurologist in 3 months, We will continue to work with Molly at the YMCA which helps us to see problems and successes we can share with the Doctors.

Hope we have uncovered all the issues we need to deal with but only time will tell if we did.

From where we started

                     Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her learning Style

Looking back at where we started in this picture of our two girls and my Mom and Dad back at Chloe's first Christmas who would of thought we would find a treatment and what the treatment would be.

We saw Chloe's neurologist today, she asked to recheck Chloe's Vit D, Iron, and B12, deficiencies to see after 3 months of taking supplements to see if we got these into therapeutic levels. She also referred Chloe to be assets for other treatment options for the nerve and muscle issues on the left side of her neck and left shoulder by another Doctor

 Her diagnoses is chronic headaches, ADHD. Migraine headache and musculosketal pain