Cat Scan found an asthma issue!

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style

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Since the age of 5 years old Chloe has been diagnosed with asthma. Her peak Flow at that time was lucky to hit 50, but now she pretty consistently hits 300 which is the low end of normal.

 We never knew why but the Cat Scan found her air hole diameter was 31.9mm and normal range is 52-110mm. This is the tube that goes from the back of her mouth into her lungs.So the diameter of tube is the distance across the tube's center point. The bigger the diameter the more air a person can take into the lungs, Cat scan picked this up where no other test did before

So the TMJ doctor has shown where the problem is. The surgery he recommends to fix the problem needs to be considered but I am not sure how it may play into her nerve damage on the left side. He said this could really improve Chloe's quality of life. I will need to discuss this with her neurologist who was worked with her for over 5 years and see how the surgery could impact the left side issue she is being treated for, I will then check with her regular doctor for her opinion too. Right now Chloe's is scheduled at the end of the month to get her wisdom teeth removed which could be a big help too

. We are working with the YMCA to check her stamina and so far we think she could handle a 10-20 a week work schedule.

Getting closer to the cause of the problem!

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style

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This was found  on:    www. medicalook.com

CT SCAN DEFINITION

A CT scan (also known as computerized tomography scan) is a series of x-ray views taken from multiple angles that are processed digitally to create cross-sectional images of your soft tissues and bones inside your body. The images are like single slices from a loaf of bread that will give your doctor a better idea of your organ and bodily health.

Chloe had her CT scan on Wednesday and we were impressed how well she did. Thursday her medical records came in the mail and I ran it into the TMJ doctor's office and set an appointment for 2 weeks. Hoping the results of the test would answer the following questions.

!. How do we get Chloe's mouth open to extract the 4 wisdom teeth?

2, What is causing these headaches and can it be fixed?

3., What other tests may she need to do to get answers to these questions

We may have answers to share in the next month!  We are close to an answer let's hope this test gives it to us!

Temporomandibular disorders

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style

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Thanks to my husband  for his determination to get Chloe an Ipad. It has really helped get Doctors attention  on this left jaw issue which comes and goes depending how her body is positions.

Here is what we know so far>

Saw the TMJ secialist who looked at all the pictures I showed him and he then measured Chloe's ablity to open her mouth and how her right jaw joint seemed fine but the left jaw joint popped a lot. He said x-rays are the next step to answer if it would be surgery or physical  therapy would be the next step.

He said her forehead issue is possible another issue which is viral. 

Chloe also has a acute vision and hearing which could be a symptom of a loose or unattached jaw. He asked me to get her medical records including a statement from her eye doctor.

 The medication that made a difference in her responses may of cleared up the headache related to this problem which gave us a look at what was underlying problem .

Thanks to the YMCA for the exercises sessions  which  Chloe works with a person twice a week. Her  family doctor says it helps her asthma and now may of helped her handle theTMJ Doctor   detailed evaluation around her face region.

Her comments after the 60 minute appoint was, "I am not seeing this guy next week!" So we will wait a couple of weeks  and I will get her medical records together.

So we will keep you updated on our progress, Thanks to all who made this happen!

Where do we start?

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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                       What are  the medical treatment goals and how do we reach these goals?

!. First shared the symptoms we noted in the previous log  on the phone with the Neurologist's nurse. l told  her about the pictures I had of what I thought was the problem. The nurse asked me to send the pictures like the one above to Chloe's neurologist

2. Received a call back the next day referring Chloe to a Jaw specialiist dealing with TMJ pain issues. To evaluate why Chloe jaw moves to the left like that and why can't she open her mouth very wide. After the evaluation and treatment to either stabilize or fix the problem with the possiblity of surgery to fix the jaw

3. Hopefully at this level she can open her mouth and get the 5 teeth removed by an oral surgeon with the possiblity of surgery here too,.

4. This all starts July 1, 2015 when our insurance change.

5. The pain is some what controlled by the muscle relaxer and  antinflamatory medication and topical pain relief. Trying to get people to understand  Chloe acts out because of pain or fear of the situation might make her feel pain. People give me a blank stare like they can not see how the two are related.

6. Symptoms of PTSD from Mayo Clinic website.

PTSD symptoms are generally grouped into four types: intrusive memories, avoidance, negative changes in thinking and mood, or changes in emotional reactions.

Intrusive memories

Symptoms of intrusive memories may include:

• Recurrent, unwanted distressing memories of the traumatic event
• Reliving the traumatic event as if it were happening again (flashbacks)
• Upsetting dreams about the traumatic event
• Severe emotional distress or physical reactions to something that reminds you of the event

Avoidance

Symptoms of avoidance may include:

• Trying to avoid thinking or talking about the traumatic event
• Avoiding places, activities or people that remind you of the traumatic event

Symptoms that may help identify the problem

Chloe The Kinesthic Learner. How Her Health Issues Interfered with Her Learning Style
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Chloe needs 5 teeth out but cannot open her mouth wide enough only 50% of normal, The medication cut the pain issue but only got her to open her mouth to about fifty percent, Here are symptoms that hopes to show where the problem is. We will continue to update our symptoms as they emerge

Symptoms so far.

1. Cannot open mouth to normal width

2 .But  pain did decrease  with anti- inflammatory med and muscle relaxer 

3. Quarter size red and inflamed area over left eye treated with lidocaine ointment daily.

4. left side of jaw unusual movement (Have profile pictures of examples)

5. Left shoulder asymmetrical to right shoulder.

6. When she has a  lopsided headache  she can not grasp with left hand.

 7. Sensitivity to noise and vision has decreased with the pain medication.

More symptoms 

 8. Darker discoloration of the area on the leftside of forehead  Chloe has more intense the pain.          

9.Excessive Grinding teeth noted during lopsided headache. Not usually present otherwise.

10. Excessive biting down on seat belt shoes etc… when headache issues arise  

Neurologist hopes the oral surgeon can identify what is causing the mouth not to open normally and why the pain medication is helping. 

Another piece to the puzzle!

Chloe saw a Dentist last Friday who tried to get her to open her mouth wide. He was very nice and Chloe was eager to try. She was not able to open her mouth any wider then about 50% of how wide it should get. He questioned why she could not open her mouth any wider and referred her to an oral surgeon and to stay on the medication that was getting it to this width. He said the 5 teeth could be causing this but he doubted it.

He said this could be a great out of pocket expense so the other option is to stay on the medication that is working to this point. My husband dental HMO is new July 1st and so is medical insurance. We decided to waited till July1 when Chloe will have 2 HMO Dental insurances and 2 medical insurance to cover the costs. We hope that the 5 teeth extractions  will be the problem but the Dentist warned us not to count on it.

The smile in the picture above raises more question about the  left-side  of her face the source of her pain issues that was helped by these pain medications

May 12, 2015 update

We are checking out a Dentist that works with Chloe's two insurances to get him to send in a prior authorization to both insurances so we can go a head with the extractions.

Chloe is on one medication for pain and inflammation and a muscle relaxant used to treat muscle spasms associated with multiple sclerosis or spinal cord injuries. These medication also could be controlling the teeth pain too. Her doctors are eager to see how these extraction may lessen the intensity of the pain she is experiencing.

So wish us luck that we have gotten through the insurance maze and now on the right track to get this dental surgery done;

I will post next week about our appointment at the end of this week.