Our daughter’s medical puzzle maybe figured out?

                                    February 7,2020 Chloe saw a new dentist  that identified an issue we were trying to find answers to for years from her doctors and dentists she had since birth New dentist said it was unacceptable that she could not open her mouth. He called it Temporo Mandibular joint dysfunction.

This is the Mayo Clinic description of this problem;

Overview

The temporomandibular (tem-puh-roe-man-DIB-u-lur) joint (TMJ) acts like a sliding hinge, connecting your jawbone to your skull. You have one joint on each side of your jaw. TMJ disorders — a type of temporomandibular disorder or TMD — can cause pain in your jaw joint and in the muscles that control jaw movement.

The exact cause of a person's TMJ disorder is often difficult to determine. Your pain may be due to a combination of factors, such as genetics, arthritis or jaw injury. Some people who have jaw pain also tend to clench or grind their teeth (bruxism), although many people habitually clench orgrind their teeth and never develop TMJ disorders.

In most cases, the pain and discomfort associated with TMJ disorders is temporary and can be relieved with self-managed care or nonsurgical treatments. Surgery is typically a last resort after conservative measures have failed, but some people with TMJ disorders may benefit from surgical treatments.

Symptoms

Signs and symptoms of TMPain or tenderness of your jaw

• Pain in one or both of the temporomandibular joints
• Aching pain in and around your ear
• Difficulty chewing or pain while chewing
• Aching facial pain
• Locking of the joint, making it difficult to open or close your mouth
• When to see a doctorSeek medical attention if you have persistent pain or tenderness in your jaw, or if you can't open or close your jaw completely. Your doctor, your dentist or a TMJ specialist can discuss possible causes and treatments for your problem.                                                                                                           

There are many potential muscle relaxants that can be used for TMJ.. Chloe at birth was diagnosed “Floppy Infant” with a weakness on the left side of her neck, Her left side of her body developed asymmetrical to her right side. The jaw issue could of developed in her upper back that caused her to have tightness in her jaw and neck down to her shoulder..
We discuss these issues with her neurologist, Along with her medication two anticonvulsants that deal with nerve pain and a muscle relaxant to loosen up her TMJ issues.

Chloe still has bouts with headaches then remission periods much less intense headaches and then when we started.  These headaches are like cluster headaches.These headaches are all on the left side if her body, neck and head. Her left eye droops and she covers her eye with her hand becaus she does not want to see all the the lights in that eye. The new muscle relaxer has lessen the severity and helps shorten the duration of the headache.

We knew we had the right treatment every increase in medication or change of one to another. She started speaking in sentences and she started helping give more information to her doctors to aid in her treatment. We found she remembered a lot from her childhood but could not expresswhat she knew till she started this treatment.