Saw the neurologist in the beginning of February. I let him know what we found out so far.
1. Headaches are still present but the intensity of the pain has greatly decreased.
2. Since the previous visit it seems like her issue steadily calm down.
3.Cold weather makes her headaches more intense (single digit temperature , wind chill).
4. Other atmospheric events also trigger the headaches (Full moons, hurricanes etc...)
5. She still have problems with crowds possibly the crowd will trigger her headache and it has in the past.
6.On this medication she can actually track with her eyes better(look at her feet while she puts on her sockets and shoes.
Chloe now wear glare resistant glass and is beginning to strength her eye control. Her vision specialist who worked with Chloe before this medication and now encourage her to see what she can do with the improved eye control. Chloe is listening to 30 min lecture on different subjects that she is interested in. We are slowly increasing her time doing this. She needs to strengthen her eyes endurance.
The neurologist increase the low dose she is on to slightly higher dose. We will report back to him what we see different with the slight increase in 6 months. I am researching “12 Cranial Nerves”too!
Sunday, February 10, 2019
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