Chronic Nerve and Back problem or Fibromyalgia since birth?

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      In October when we see Chloe's neurologist, I will show her the daily progress notes  and will discuss this question with her..

Fibromyalgia symptoms are described in the following website.
                                                                                 http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001463/#adam_000427.disease.symptoms

 Chloe had weakness in her left side of her neck and upper back and diagnosed floppy infant at birth, Now with the proper medication she is now increasing her schedule with out outburst that before we now know would increase in intensity depending on much pain she was experiencing.

We see with the lessening of pain, she is able to communicate better and her ability to physical do things she was not able to do before,

Chloe found the right Doctor to help her work through and hopefully steadily lessen the intensity of this disorder,

September 8, 2014 Symptoms of this Nerve-Migraine disorder that surprises us.

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Symptoms that these medication has uncovered symptoms that we did not expect. The motion sickness medication seems to uncover the first area we need to work on. Chloe complained of her stomach and the neurologist tried  many ways of helping her stomach issues to no avail then finally she tried the motion sickness medication. Then Chloe comment seem to tell the Doctor she was on the right track. Chloe would ask,"So why don't I feel like throwing up?" This is a statement that is repeated in each activity through her day.

Chloe is working with Molly at the YMCA starting twice a week. She is working on stretching her arms away from her body. She maybe working on improving her vestibular symptoms because she now has greater arm mobility now that she has the medication  helps her not feel dizzy or like she will throwing up .

http://vestibular.org/understanding-vestibular-disorder/symptoms

Car rides long distance and stretching exercises use to cause her to exhibit a number of symptoms that we now may point to vestibular issues. Hopefully with the new medication we can increase exercise to help lessen these symptoms and build up her endurance.  Chloe is exhibiting increase endurance most activities and we hope to see continued improvement.



C