2013 Was Quite a Year.

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This year was  identifying the medication that helped to shrink the nerve in her neck. We saw she has greater use of her neck and able to open her jaw wider then ever before. She is able to use her arm off to the side and below the shoulder. If she puts her arms above her head for to long she does show pain. She has been able to identify her medical symptoms clearer then ever before. So  this year our visits to the Neurologist we will bring these symptoms to her attention. With Chloe being in what appears to be much less pain she is able to identify and describe her symptoms with more clarity.

Chloe will continue to work with Molly her fitness trainer to develop stamina in using her arms away from her body. We will also start to investigate a job coach who might help her start at a 10 hour a week job that would help with this arm stamina. Also Chloe continues work on I pad educational games and improve her skills on other computer tasks while trying to improve her skills not able to do before  like folding laundry and zipping her coat.

Chloe accomplish a lot this year but still has more to do!

Merry Christmas

The treatment appears to be working! We will go to two sessions with the fitness trainer in the New Year to check out Chloe's endurance and how much work we can get out of her shoulders and arms. So far never expected her big smile so who knows what we will find!

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Working through headaches one arm at a time!

Treatment is working! Never saw her able to smile so much and in enjoy taking pictures

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As we exercise the arms we maybe seeing a pattern emerging. The exercise is Chloe sits on an exercise ball lifting her arms one at a time. to reach,stretch and hit a ball the fitness trainer holds at different positions for a 30 minute session.

Getting up the next day she was crying but able to point where it hurt on her forehead. With medication she handle a short shopping trip well.
Day 2, Heighten  sensitivity to noises and pointing to middle of her fore head as the issue, Doctor gave Chloe pain medication slightly strong then over the counter which help with her excessive repeating of questions which might be a gauge for her pain levels. Still workable  went on another short shopping trip.
Day3, Sensitive hearing middle of fore head issues. Workable went out for breakfast with her dad and another outing with me later.

Chloe wears ear plugs on community outing. We will keep track of this symptoms for the next couple of weeks then report to the Neurologist our finding. These headaches were much more intense  when we started. We hope with exercise they will lessen and Chloe can builds endurance in her arms and shoulder which will help with a future job!