Symptoms

Let us recap what we know. Chloe was born with a generalized weakness on her left side of her neck and left shoulder. Her rapid growth made the problem worse. Floppy infant is a symptom of a neurological problem but there are many so figuring out which it was took time. She needed rehabilitation to meet all her milestones which she did. For her to smile and keep her eyes open on photos is quite an accomplishment.
The facial nerve problems also can create sensory problems with this treatment we see lessen.

Our goal now is to figure out if the pain can be triggered by any arm or head movement while showing Chloe the pain is not there anymore. Chloe will be working on stretching and coordinating arm movement with a personal trainer at the YMCA. We having been doing this already so the trainer will be the next step which she starts in November. We are doing community activities like picking up items we need around the house and going out to eat working or walking with street light. So far building Chloe's confidence in herself has been a big issue but improving daily.

So far so good!

Improvements continue!

Chloe has much greater control of that facial nerve and it shows  that she is on the right doses and the tens unit is very helpful. Chloe is able to have fun taking pictures and not always look like she is in pain (which she was)!

What are the noticable changed and what are we working on!

So what is different?
 Being able to take a picture and not have eyes closed or looking like someone is killing her.
We find her not holding her ears as much but still has a scared look or look of disbelief that nothing is happening.
Her ability to listen to a lesson and take a quiz after it that shows she understood what was said.
Still working through a lot of fear that the pain will come back and the surprise that it has not yet.
She wears a bracelet on her left arm because she seems more aware of the left arm and will use it more.
What are we working on now?
Figuring out what is the optimal dose of the two medications to treat this issue.
Go back to the YMCA and see what the arms can do stretching and hopefully not uncover any other pain issues.
Then go back to volunteer at the thrift store and see how they respond there.
The next would be to find a part time job and hopefully Chloe will have confidence in her arms too!