Treatment is working

As you can see by the picture Chloe took of herself, we seem to be on the right track! We are beginning to revisit the places where the swollen pinched nerve caused her to fall on the floor in pain the place where we exercise. We also hope to get back to the thrift store where she used her shoulders and arms pretty intensively. We need to check out if the pain issues are gone by first dealing with her hysterical reaction to these place.
 Goals are to let her left arm do what it can and see if any problems arise. Bracelets on her left wrist m makes her more aware of that arm and she appears to use it more voluntary. So far  this seems like the  right combination  but I will be more comfortable when we get through hurdles mentioned above.

Pictures can show how the treatment is working

Smiling and interested in how things work. This tells the Doctors and me we are on the right track!

Since Birth:

Since Birth means you are born with certain problems. Chloe had symptoms of

http://www.ncbi.nlm.nih.gov/pubmed/19078754

J Clin Neuromuscul Dis. 2004 Dec;6(2):69-90.

Floppy infant syndrome.

Igarashi M.

Source

From the Department of Pediatrics and Neurology, University of Tennessee, Memphis.

Abstract

Floppiness/hypotonia is a common neurologic symptom in infancy. A variety of neuromuscular disorders and central nervous system (CNS) disorders cause floppy infant syndrome (FIS). CNS disorders are the much more common causes of the syndrome than neuromuscular disorders. On long-term follow up, cerebral palsy and mental retardation turn out to be the 2 most common causes of FIS. This review focuses on neuromuscular causes of FIS. With the advent of molecular diagnosis, a few conditions can be diagnosed by DNA analysis of the peripheral lymphocytes (myotonic dystrophy, spinal muscular atrophy); however, for the most part, electrodiagnostic studies and muscle biopsy remain as essential diagnostic tools for FIS. Immunohistochemical study of the biopsied muscle also improves diagnostic capability. Management for most conditions remains supportive.

PMID:

 

19078754

 

[PubMed]

 

 

Secret weapon!

The key ingredient for us to help us figure out our unique health issues


 Since birth, I have been dealing with genetic blood disorder that gives me a greater chance of a stroke. I worked with my health insurance through my 30 years of employment to stabilize this disorder.

My daughter since her birth, worked with her Dad’s health insurance to uncover her spinal cord issue that caused some nerve damage and treatment to stabilize this medical problem.

I believe in Obamacare, the ability to get health insurance. I believe everyone has a right to get medical treatment to live their lives to the greatest potential.

Jacqueline Skubal Anderson ( Author)

Chloe The Kinesthic Learner How Her Health Issues Interfered with Her Learning Style

Recovery continues

Hi Everyone,
Labor Day has past and our progress update is showing Chloe's improvement continues. The fall allergy season of weed allergies and mold allergies continues to interfere with her recovery and a factor in the  intensity of her headaches. Hopefully this season will pass and we see even more improvement.

Some medication adjustments were needed. The night time medication was increased to see how this effects her left arm mobility, opening of her mouth and neck rotation.
We had to adjust her morning medication that was affected by the increase of the night time medication.
 The Tens Unit she now takes twice a day morning and evening, we see her asking for it at those times too.

Symptoms
1. She is able to open her mouth to the low end of normal but can get it wider if she needs to. I have her use an extra large tablespoon for soup. So when there is a need to open wider she can do it.
2. Headaches still are there less intense. She averages one major one a week. Now we have warning that she has problems by her eye lids unable to lift up in mornings. She actually walks around looking at things with her eye lids three quarters shut. This is what I am tracking and need to discuss with the neurologist at her next appointment. Overall headaches are still there but much less intense and she is able to describe them better. We continue to talk about staying calm to be able to describe more accurately.
3. Left arm we are now doing stretching exercises over head. I am not pressuring her to use the arm but trying to get her to use it naturally. She is working on folding Clothes, dishes, typing and playing recorder and keyboard. She is working with an I pad and Laptop too. We are working on building up stamina in hopes she may get a part time job.
4. The nerve is improving and we are seeing other symptoms improving. She is not holding her ears as much. She seems to be overcoming fear of TV. She is back playing her music loud and is less apprehensive  of people talking around her. We are able to do community outing like eating out or going to store so Chloe can see other's at work. This is  when her headaches are under control.

Slow and steady progress have her do activities naturally has been the best approach!