Monday, November 26, 2012

Today we visited Chloe's neurologist in Menomee Falls to update her on Chloe's progress! Here is some of the report we gave her.
 Problems Chloe had since birth with a bulging disc in her neck that caused cranial headaches and had little ability to use her arms away from her body or over her head. Now that she has the disc back in place and arms are able to work over her head and away from her body, we are working on stamina and and endurance to get her into one day a job setting. This is what Chloe states is an important goal for her.


Physical Therapist: Chloe has two more sessions left. Chloe use of her arms has greatly improved and headaches have lessened. Her schedule has increased and she looks forward to the activities she does each day.  Her resting time has lessened between activities. Headaches have lessened but are still focus on the left side of her head over her temple but have had problems across her forehead.  Last two sessions will focus on at the top of her neck and working the muscles in that area.

YMCA personal trainer is now working on rowing machine, exercise ball and elliptical which  has help with the arm development. She now does 50 rows on the rowing machine without headache issues and she sees her trainer twice a week. She use to have to rest due to headaches she now is ready to do other activities
.
Swimming: Chloe is now able to do the elementary backstroke and can do up to 10 lengths of the pool independently without flotation devices. She is now working on coordinating her arms and legs which takes verbal prompts. As she better coordinate this swimming style we will begin to explore her arms in the back crawl or backstroke. This is one day a week.

Saint Vincent DePaul thrift store: Chloe has been working there since July. We have increased it to an hour and a half in December then hopefully 2 hour in January. She enjoys the work experience and gets great practice using her arms in functional activities. This is also one day a week.

Two days a week we go to a Mall to pick up items we need. Chloe looks forward to the planning then the picking up of the items in the stores we got to.

Monday, November 19, 2012

The book and pictures are sent in to my Submission Coordinator, I do not know how long the editing and  publishing takes! Here is another paragraph from the last chapter!


Chloe growth was a big issue till she stopped growing. She is now 5 feet 9 inches tall and a T-shape body that means the widest part of her body is her shoulders. Doctor’s have suggested if her body was smaller and her body type was different her issues possible would be lessen. Allergies and asthma we had to stabilize which took allergy shots and special diet to avoid food she actually had more of a behavioral acting out on.






Sunday, November 11, 2012

Thanks to all that help with their suggestions on the final chapter. Here is a paragraph from the final chapter!



Musical therapy was one of the smartest moves to get the professional attention but was not covered by our insurance, thankfully the least costly of all the therapies. Chloe was able to demonstrate she could use her arms  from her elbows to her hands to play the recorder  the piano, typing and even printing  but could not hold her arms straight out from her body or over her head. I heard from several doctors that the shoulders are the most magnificent part of the body but the least understood. We all agreed to try and figure out why Chloe arms could do fine motor tasks but not gross motor. The referral to the neurologist questioning why Chloe arms were responding this way and why her left shoulder was higher then her right were the concerns we stated to the doctor.