The Journey continues.....

Our daughter, now 17 has a neurological disorder, which causes less than normal muscle tone and balance issues since birth. Primary issue in school was she cried often and it was questioned if it was because of pain. The pediatrician prescribed medication that controlled her asthma and allergies fluids and excess fluids in her body and a pharmaceutical quality Omega-3. Chloe has seen allergists who identified food and environmental allergies.

A physical therapist found her extensors muscles stronger then her muscles that flex and right side joints are loose. Chloe has tinnitus in her right ear and also right jaw, right arm, right eye and right hip issues. She complains of headaches and asthma that might be related too. She is also right side dominate and presently five feet nine which professional have said if she was only shorter or left handed she might have fewer difficulties. The physical therapist set up an exercise program that Chloe does daily.

Vision and hearing are important to balance, so our next stop was an eye appointment. The eye doctor found her vision to be good but she did have a glare issue. He recommended glare resistant glasses. We found not all glare resistant glasses are the same some helped the eye condition and others made her stumble and fall. Her headache improved and attention to her studies did too. When asked what hurts, she points to the left side of her forehead most of the time.

Braces that look like sleeves supporting her elbows improved her arm control. Her pediatrician referred her to an occupational therapist that suggested that these sleeve braces gave Chloe proproceptive feedback to her brain, which help her have better control of her elbows. Also noted that her right side shoulder was lower and smaller then the left but only noticeable when it was pointed out to me. Since Chloe started with the OT what is found out so far is her right arm and shoulder appears stronger then her left arm and shoulder and with these braces her ability to use both arms in fine motor activities is also steady improving. What ever is affecting the left shoulder and arm seems to be improving with weights, stretching and trunk rotation exercises.

Her asthma and headaches are under control even in this pollen season So it appears we are on the right track.

Chloe still sees a music therapist and adaptive trainer who help identify symptoms that we took to the physical therapist and occupational therapist to explain what we might be seeing. Chloe works on GED and computer programs that help her with her studies. This is her home schooling course work she is doing.